I hate these words: “he lost the fight with cancer” or “she’s so brave in the face of her illness - what a heroine.” Hate is a pretty strong word — but then I’ve been living with chronic illness for 30 years and some feelings have been building inside.
I’m thinking of the recent press […]

Thank you to Amy Tenderich over at DiabetesMine.com for writing an eloquent review of the new book that I co authored with Joan Friedlander, Women, Work and Autoimmune Disease: Keep Working, Girlfriend!
Her first line sums up SO much. She writes: “If ever two things were once considered mutually exclusive, they […]

Joan Friedlander and I were interviewed on Disability News Radio (you have to scroll down under the May schedule to find the link to the interview) about our book, Women Work and Autoimmune Disease: Keep Working, Girlfriend!
You can click here to read more about our experience being interviewed …
I’ve been affiliated with an amazing […]

How do you know when it’s time to tell your boss about your chronic illness?
I got this question in my email today (I added the bold):
“At what point, if ever, do I need to tell my employer I have a chronic illness? In the past, I’ve always gone with the philosophy of not mentioning […]

If I had a dime for every time someone said to me,”I’d like to be self employed”, I’d be rich (well maybe my pockets would jingle). You don’t have to have a chronic illness to dream about self employment. But I can tell you from personal experience, it […]

How hard is it for you to regulate your own environment? How well do manage your resources? Forget it - you can’t look to the United States government or most of the developing countries of the world for a role model - they stink at it. Why?
My theory is because it’s just […]

If Andy Warhol was right, I’ve used up my 15 minutes of fame.
That’s how long it took for me to read this article “Working While Chronically Ill” , forward it to my family and take a breath to revel in the press!   It’s in the “Shifting Careers” column of the […]

Several emails asked me to post a picture from my trip to Argentina. This was Iguazu Falls. Impressed that a sign indicated wheelchair accessibility — but disappointed no rating for “people with bad balance that gets worse in intense heat!” But we know that chronic illness symptoms […]

I recently discovered the website, celebrating uc success where I read about Joshua Reineke who is doing remarkable things — while living with a chronic illness, ulcerative colitis (UC) . I wrote Josh and asked him if I could interview him so you could hear his story.
By the way, Josh is a […]

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I sat down to write my usual post — about chronic illness, career, issues that move me.   But,  I’m distracted by my  “to do” list:  Work (did I email […]