By: Mary

Mary — Thu, 04 Jun 2009 19:38:51 +0000

I put an applause ringtone on my cell phone. When I have really done a great job & it took a lot of my energy I give myself a standing ovation. Sometimes you just have to throw your own party!

By: Rosalind

Rosalind — Thu, 07 May 2009 19:04:47 +0000

Thanks for sharing this, Sue. It can be lonely some days knowing that you’re alone dealing with this – no matter how many people you’re surrounded by. You’re right to appreciate what you’ve got and to keep doing it. The alternative can look better but rarely is!

By: Sue Morgan

Sue Morgan — Thu, 07 May 2009 16:47:13 +0000

I really related to this story. I am the Administrator for a 125 bed Skilled and Rehabilitation facility. I was diagnosed with MS 7 years ago and have been on Rebiff therapy almost that long. Many days I look out my window at my car and think “how am I ever going to be able to drive home?” My job is 24/7 and has its rewards but also has its share of down side. You can’t put off a family who needs to see you or staffing problems because you are having a bad day. No one cares how tired you are. They are caught up in their own medical dramas. I virtually vegetate on the wekends trying to store up enough energy to go at it another week. Week day evenings it’s a light supper and in bed with the TV by 8:pm. It really is a matter of survival. I am my sole support. But I have often thought that if I did not have a job that fortunatly I can do from a wheelchair if necessary, just what would I do? I am still far more active than other people I know who had had MS as long as I have and I think I owe that to my job and the the Rebif. So I will continue on even when I myself don’t know how I am going to do it because to pull out of a 30 year carreer would, I am afraid, leave me hopelessly adrift. You just get through the day the best way you can for as long as you can. It works for me so far.

Comments on: What do you do when you have to keep going?

By: Mary

By: Rosalind

By: Sue Morgan