Archive for February, 2009
It’s sad that we need to set a “DAY” aside to recognize something as important as rare diseases (and grandparents, secretaries…).
Feb 28 is National Rare Disease Day, NORD, notes one of my favorite bloggers, Laurie Edwards (achronicdose). She should know. She lives with rare disease.
The goal is small: Raise public awareness (and then maybe get [...]
Children as caretakers
In yet another example of how badly we need improved services, The New York Times, In Turnabout, Children Take Caregiver Role , reports that the number of children taking care of chronically ill parents is increasing.
We’re not talking about rural Pakistan. It’s happening here in the U.S.– and Britain and Australia.
As a chronically ill [...]
“Quality trumps cost. I know that because when you lose your money, your friends console you by saying that “at least you still have your health”. When you get sick, they don’t tell you that “at least you still have your money “.
Tom Lee, cardiologist, President Partners Community Healthcare, Inc., regarding “the value [...]
It’s Just Pain
HEY – I’m on Twitter but still a NEWBIE. Find me there (see the bird in the left sidebar)), follow me and share- what you’re up to with CI & working.
OK – It’s time to admit to myself. I’m living with another chronic physical problem – pain in my head, specifically the sinuses. We don’t [...]
Randy Duermyer writes, How Working At Home Found Me. This is a useful blog about working at home – check it out. People email me asking about starting their own home businesses as I did. They’re say they’re tired of showing up when they’re so sick. What does it take, they want to know.
This [...]
Have you recently lost your job – – and live with a chronic illness?
Recently I heard a career specialist on CNN give advice about what you can if you lose your job and you’re in an industry hit hard in this recession.
The interviewer wasn’t focusing on the chronically ill — but it doesn’t matter. “This is [...]
Are you thinking: it’s got to be easier to work for myself rather than dragging myself into work every day?
A reader asked me to write about this: I would really like to see more profiles with people who own their own business like you. I am so demanding on myself, that when I am [...]
A few weeks ago I blogged about my own sinus surgery to improve rinitis .
I’ve felt worse post surgery than before – and it’s been 4 weeks. This was not expected and caught me unprepared.
What happened? I was supposed to “naturally” shed the scabbing that occurs from breaking nasal passages. But it hasn’t gone as [...]
