Archive for August, 2008
Disclosure? The big question.
If you live with an invisible chronic illness, you probably find the question: When do I talk about it for the first time? — is on your mind, a lot. That would be true with any relationship but particularly at work – where performance is key.
When I wrote the chapter about disclosure for our book, [...]
Invisible but still here
When I became very sick 30 years ago and the diagnosis was multiple sclerosis, I didn’t have a clue what that meant.
But hey, I wasn’t alone. No one else did either.
Not much has changed — which is why it’s still chronic illness and not cured and healthy!
But one thing I know for [...]
How patients with chronic illness should talk with their doctors is a frequent topic online. Laurie Edwards wrote about what patients need to think about in terms of other patients (The patient to patient relationship).
But are you telling your doctor enough information about your current job situation?
Think about it. Does your physician [...]
Have you asked for flex time because of invisible chronic illness symptoms – and not gotten it? Emily, who blogs on Finding Equilibrium, did so and when she couldn’t get what she needed, she quit her job to work on her own in a virtual capacity. That was a big move for [...]
I write books and create programs for people to give them motivation and skills that will help them do better with careers living with chronic illness. But I have to tell you. -There are times I get really down about how hard it is just to get by when you live with active chronic illness.
A [...]
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When you’ve taken time off from [...]
Stress and chronic illness symptoms. Sort of like Batman and Robin, peanut butter and jelly, tea and sympathy? But do they have to be…
Yesterday (a gorgeous summer Saturday here in Gloucester), I had a busy morning that sounded great when I was planning it : early morning kayak with my husband, Jake, food shopping at [...]
“What we’ve got here is a failure to communicate.”
Cool Hand Luke
I bet that if you live with a chronic illness you understand what I mean when I say: The single most difficult issue that I’ve faced living with chronic illness hasn’t been feeling lousy or having pain. It’s been knowing what to say [...]
Monkeys, Dogs and a Job Lead
Today’s post has two ideas for help we can get to make ourselves even more productive while living with disabling symptoms and a job idea.
Do you ever go to health fairs? They’re often sponsored by pharmaceutical companies and some people don’t like them for that reason but there often really interesting vendors (like [...]
I was interviewed for an article about strategies for continuing to work with a chronic illness (Staying on the Job). Although the reporter didn’t spell my name right – and referred to me as an executive coach – he got my quotes right.
No surprise, my contributions focused on looking for how to approach the [...]
