But there is one thing I worry about (full disclosure – there are two things and the first is that anything should happen to my daughters -but that’s another topic).
I worry about being in a situation where I can’t get the medicine I need to keep the multiple sclerosis at bay (in my case, Avonex) and the supplies I need to take care of my ileostomy.
That’s why Amy Tenderich’s post at DiabetesMine.com literally sent shivers up my spine. In the post, Preparing for the Worst”, she refers to a CNN article, “Docs List Who Would Be Allowed to Die in a Catastrophe” , ” an influential group of physicians has drafted a grimly specific list of recommendations for which patients wouldn’t be treated.” The list specifies severe chronic diseases that would not be able to be attended to in case of such emergency. If you want to check the list, I suggest you look at the article. It includes a lot of us.
I file this stuff under V for vulnerable. When I developed a second chronic illness, worse than the first, I realized that I, too — a white, Jewish, well educated and affluent woman – was vulnerable, just like a lot of the rest of the world.
The good news for me is that the wake- up call didn’t come too late. I still had time to learn that my best bet is to live my life as if each day is all I’ve got. It doesn’t always work. But when I forget, at least I know that I have to remind myself.
What do you do to remember this truth?
Rosalind aka cicoach.com