http://workingwithchronicillness.com/2008/05/19/living-with-vulnerable/ Sat, 10 Jan 2009 00:22:38 +0000 http://wordpress.org/?v=2.5 http://workingwithchronicillness.com/2008/05/19/living-with-vulnerable/#comment-2770 Rosalind Wed, 04 Jun 2008 13:27:05 +0000 http://workingwithchronicillness.com/?p=341#comment-2770 So true . Among other things, chronic illness can make us more aware of our vulnerability. But it sounds as if you're clear about what you need to do to keep that from getting in your way. So true . Among other things, chronic illness can make us more aware of our vulnerability. But it sounds as if you’re clear about what you need to do to keep that from getting in your way.

]]> http://workingwithchronicillness.com/2008/05/19/living-with-vulnerable/#comment-2761 Celeste Tue, 03 Jun 2008 22:07:12 +0000 http://workingwithchronicillness.com/?p=341#comment-2761 Those of us with chornic illness are just more aware on an hourly basis of our vulnerability. We are all vulnerable. I work a very stressful full time job and am also on hemodialysis three days a week. If a catastrophe were to hit-- I would need access to my unit (electicity, clean water, nurses) etc.. and without dialysis I would die in two weeks. It would be a big bummer-- but i don't let this occupy my thoughts-- I let it motivate my day. I enjoy what I do-- it has a lot of pressure-- but it is not life threating and I take each interaction with that as my measuring rod-- Those of us with chornic illness are just more aware on an hourly basis of our vulnerability. We are all vulnerable. I work a very stressful full time job and am also on hemodialysis three days a week. If a catastrophe were to hit– I would need access to my unit (electicity, clean water, nurses) etc.. and without dialysis I would die in two weeks. It would be a big bummer– but i don’t let this occupy my thoughts– I let it motivate my day. I enjoy what I do– it has a lot of pressure– but it is not life threating and I take each interaction with that as my measuring rod–

]]> http://workingwithchronicillness.com/2008/05/19/living-with-vulnerable/#comment-2594 Rosalind Joffe Wed, 21 May 2008 15:44:56 +0000 http://workingwithchronicillness.com/?p=341#comment-2594 Maria, Those are some pretty difficult choices - choosing between not great and not great. Good for you that the gratitude journal works. Maria, Those are some pretty difficult choices - choosing between not great and not great. Good for you that the gratitude journal works.

]]> http://workingwithchronicillness.com/2008/05/19/living-with-vulnerable/#comment-2593 Maria Wed, 21 May 2008 15:24:33 +0000 http://workingwithchronicillness.com/?p=341#comment-2593 Vulnerable is a good way at describing how many - including myself- feel when we have to make the decision to either earn more to ease the monthly budget or work and live with less in order to maintain our prescription assistance programs. Living with less is fine with me, however the stress I feel when I pinch my pennies only adds to the problem of managing my lupus/kidney disease. I continue with a gratitude journal that sets me in the moment of knowing I could flare or lose my meds at any time, leaving me without medical coverage. It inspires me to be thankful for another day to care for myself - do anything I can to help my body calm itself and control the disease progression, if possible. I think those of us living with illness become much more resilient than we realize and can face some pretty daunting situations- stemming from either our own bodies or doctors in ivory towers. Vulnerable is a good way at describing how many - including myself- feel when we have to make the decision to either earn more to ease the monthly budget or work and live with less in order to maintain our prescription assistance programs. Living with less is fine with me, however the stress I feel when I pinch my pennies only adds to the problem of managing my lupus/kidney disease. I continue with a gratitude journal that sets me in the moment of knowing I could flare or lose my meds at any time, leaving me without medical coverage. It inspires me to be thankful for another day to care for myself - do anything I can to help my body calm itself and control the disease progression, if possible. I think those of us living with illness become much more resilient than we realize and can face some pretty daunting situations- stemming from either our own bodies or doctors in ivory towers.

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