A friend, Kelly Packowski (she and her husband have a foundation, The Kelly Packowski Foundation for MS, changing one life at a time), has had a tough spring with multiple sclerosis symptoms and she’s trying a new drug therapy that requires a surgical procedure to put a port-a-cath in her chest. I emailed her […]

I’ve been noticing how I no longer feel as “different”, now that I feel healthy so much of the time. I don’t think it’s just coincidence that I don’t feel as isolated when I’m not symptomatic.
But this weekend, I was in my husband’s parents home and the air conditioning didn’t work well. […]

I’ve invited a Guest, Stephanie,  to post this blog:

When I was in my early 30s, I decided that I needed a personal coach. I was constantly drained of energy, in constant pain, and desperate to establish a more meaningful career. I was trying to function at 200% when I was only […]

My friend, Janie, is on prednisone to counteract a horrible skin rash from poison ivy. The poison is slowly getting better but she’s finding the prednisone is horrible. At first she couldn’t sleep and now, slowly tapering it, she feels like she’s in a fog, is tired all the time and can’t make […]

In the good news department, Genzyme got the OK for testing a new drug for MS.
You ask, what’s good about this? Well, when I hear that a new drug treatment might be available, I’m glad because the more the more the merrier (at least until we get a cure). […]

The other day, I found myself complaining about my sinus headache from allergies. When I stopped and noticed it, there were 2 things that struck me about this.
ONE: I never had allergies until a few years ago and it’s become just one more health/illness thing to get used to. In […]

This weekend I had the best mother’s day present I could imagine: dinner with my two daughters. My husband had something else to do, so it was just the girls and I having sushi, our favorite thing to do since they were each a pint size.
If you’re a parent, you know what I […]

I was looking on Amazon for a book to send to a client when I did a search on the term balance and learned that there are 363,917 results! At the top of the list is The Great Balance and Stability Book. I’m not sure what it’s about but it sure is something […]

I write about how important work is for people, particularly for people with chronic illness and most particularly for  women with chronic illness.  Do I know for sure if that’s true?  I guess so (now how’s that for equivocal?)  Okay, I believe so.
I haven’t done a research study, but I do have a random study, […]

The other night, my husband went to the Boston Lyric Opera’s production of the Marriage of Figaro. I was so excited that Jake wanted to go ( a “Deadhead” — he’s a recent convert to “serious music”, since listening to Robert Greenberg’s lecture series, How to Listen to and Understand Great Music).
But, after we […]